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Craniostenosis

КраниостенозCraniostenosis is the premature fusion of one, several or all sutures between the skull bones of a child which leads to deformation and increase in intracranial pressure. In the early stages the skull bone development anomalies are often accompanied by brain development defects or interfere with its further development.

The rate of incidence of craniostenosis is 1 per 1000 newborns. The causes are not clearly defined yet: both external factors and hereditary predisposition are listed among the factors. The diagnosis is made based on characteristic changes of the skull structure, as well as the data from X-ray and ophthalmological examinations.

The nature of surgical treatment is the remodeling of the skull bones. Miniature titanium screws and plates as well as wire sutures are usually used for fixation of remodeled bones. The fasteners are removed one year after the surgery. However recently there appeared a possibility to use disintegrating fasteners which significantly facilitates the treatment of the little patients. In time such materials are naturally replaced with the patient’s own bone.

The cost of a set of necessary materials ranges from 200,000 to 400,000 rubles depending on the manufacturer and the nature/extent of the deformity.

The best results are achieved if the surgical treatment is provided between the ages of 3–4 months to 2 years. However, in some cases the deformity becomes noticeable only towards the end of the growth period of the skull (5–6 years of age) and is accompanied by headaches, fatigue, irritability and impairment of vision.

We currently provide assistance with purchasing the necessary materials for correction of craniostenosis for children who are being treated in the Russian Pediatric Clinical Hospital (Moscow) and N. N. Burdenko Neurosurgery Research Institute (Moscow), negotiations with hospitals in Saint-Petersburg, Ufa, and Novosibirsk are underway.

Faina Zakharova

“Every day we receive letters where mothers and fathers tell us about the lives of their children after surgery. You could make a book out of those stories. In a sense it could be called a textbook, a short guide for those who want to be happy. In it children show how to get into things, enjoy, exhibit magnanimity and gratitude, how to be strong and what is more, how to be children. For children are the happiest people in the word. It is only necessary to ensure that they are healthy”.